VA ALS Clinic Evaluation – Initial Findings

Aside from replacing some of my meds and adding a few more, the most interesting mention is the invalidation of a test I had 3 years ago for Kennedy’s Disease (KD) and scheduling a new genetic test for… Read More

So What Now, 2020?

Well, I have some ideas I would like to put into reality for this year. There are no advocacy groups on social media for idiopathic neuro-muscular disorder.  There are advocacy groups for named disorders, but none for the… Read More