So What Now, 2020?

Well, I have some ideas I would like to put into reality for this year. There are no advocacy groups on social media for idiopathic neuro-muscular disorder.  There are advocacy groups for named disorders, but none for the… Read More

HSP Funny of the Day

#HereditarySpasticParaplegia We have a running joke around the house about my voice. You see, when my muscles tighten, they tighten everywhere. This causes some weird things to happen. Now, we can choose to laugh or cry. Frankly, to… Read More