Posted on June 21, 2020
VA ALS Clinic Evaluation – Initial Findings
Aside from replacing some of my meds and adding a few more, the most interesting mention is the invalidation of a test I had 3 years ago for Kennedy’s Disease (KD) and scheduling a new genetic test for KD in the near future.
For more info on KD and other related disorders see: https://rarediseases.org/rare-diseases/kennedy-disease/
Too much information was given. I’m still trying to wrap my head around it all. Basically, the VA is in the fight for the long haul. I’ve got a team of doctors reviewing my case. Occupational and Physical Therapy appointments will be scheduled, medical testing, assessments to our home, counseling, etc, etc, etc.
Jay C. Theriot