Category Archives: Acute Event

20180929 Day 1: Botox for extreme spasticity

#KennedysDisease #SBMA #Success #ExtremeSpasticity, #AcceptanceWithoutSurrender

This is a discussion about initial effects of taking Botox for extreme spasticity of the adductor muscles in my right and left legs. Please realize this is targeting to very specific muscles and it is not addressing the multitude of other rigid muscles I have throughout my entire body limbs and head.

The injections incurred along the adductor muscles on the inner thighs from my groin to each knee. There were twice as many injections on the left adductor as of the right due to the severity of the left adductor.

After one day of having the injections, I feel the need to reduce the oral baclofen which I have been taking. I have slept sleep for the last 24 hours and I feel drugged. I have attended a local social event. It was a craft show at the local Civic Center. I was not doing well upon arrival. The stringent activity required to get out of the car, and into my wheelchair, and into the building took its toll. After a while my wife pushing me in the wheelchair, I was able to recover some.

I was startled to see how many people I knew attended the event. I was especially happy to see one of my former coworkers, with which I shared an affinity for a coffee break. I continue to miss work with these wonderful people dearly.

I barely had enough energy to make the entire floor. I had to request that my wife get me out of there and dump me at the house. Where I am now, drinking a BCAA to fight off cramps.

I am having to write this article through voice recognition, as will be the method primarily used to compose articles going forward. The acuity of my hands to press the keys that I need them to has degraded to the point where voice recognition has now become a necessity and not something cool.

Upon leaving the event, I was reminded that the Botox was specific to only two muscles. The issues I have with the remaining muscles of my thighs do not make me happy. I am glad that greatest offenders have been silenced. However, there is one area on the left adductor, are nearer about, that remains quite painful. As does the remaining muscles in each thigh. The pain is not as dizzying as the two silenced muscles, but I will not be playing football anytime soon.

The muscles forward of my armpits continue to be an issue and are exacerbated by their use to compensate for the lack of my muscle ability in my lower half.

I have a marvelous wife that understands the anger I feel at my body for abandoning me. I hope that one day she will understand how much she truly means to me. As I truly can be difficult to live with. I just learned that my dictation software will not allow me to say a curse word.

In Christ!

Jay C. “Jazzy_J” Theriot

Jay C. Theriot can usually be found as “Jazzy_J” on the IRC Channel #ExtremeSpasticity on Freenode.net –> see: irc://irc.freenode.net/ExtremeSpasticity. You will need an IRC Client such as HexChat to connect.

More and MORE! | HOPE! |

KennedysDisease #SBMA #ExtremeSpasticity

My last article Supporting Documentation for “The Method” indicated that I would change the things I did in response to an event in alignment to Shannon Clark’s bodybuilding method to prepare your body for an intense workout.

A few hours after I published the article, I started into an event.  I slammed a BCAA.  Followed by drinking one.  It was late in the evening.  I fell asleep halfway through the second BCAA.  By the time I was drifting of to sleep, I remember thinking, “This is working.”  My muscles were considerably tight… but, I was absent the spasms.

When I awoke at 12:30 am.  I felt the damage to my muscles.  However, I could walk.  The damage to the muscles was no where near as severe as previous events. One trial does not make a trend.  Nor does it prove anything.  However, I almost look forward to the next event.  I didn’t follow through with the protein until hours later.  I didn’t finish the second BCAA.  There were things I didn’t do correctly.  However, I believe the BCAA, for some reason, abated the more severe affects of the spasmodic event.

Today, I had an appointment mid-day.  Mid-day is generally a bad time for me.  I ate 20 g of protein one hour prior, and drank 2 BCAAs about 30 minutes prior to the event.  I drank water through the appointment.  The hour-long appointment went well.  My only complaint was my lower back was tight and I had to move around to stretch it out.  After the appointment, I went on a short shopping trip.  I pushed a buggy.  I didn’t ride or us a cane.  I pushed a buggy! 

After checkout, I was happy to make it to my automobile.  There was no question where I was headed… home.  I was whipped, but I had freedom!  I really think the method is working.  I need to go through more events before I consider this effective.

I found another medical report that suggested another drink to add to the mix.  Creatine, as my friend suggested I try yesterday, appears in the report.  Evidently, the chemical carriers that get the creatine to do what it needs to do is at a diminished quantity in KD Patients.  I need to read it a few more times and do additional research as to the implementation of the drink/powder.  But, that is for another day. Creatine, compared to the protein and BCAA mixes, is cheap.  I am curious about the chemical makeup of my body.  It seems that KD Patients have a lot out of whack.

So, until next time, I am tired.  I plan on getting sleep tonight… without spasms.  I cannot express the hope I feel in words.  If I can abate the spasms, my life would change.  I have lived with stretched, pulled or torn muscles for two years now.  The concept of not having them is foreign to me.

In Christ,

Jay C. “Jazzy_J” Theriot

Jay C. Theriot can usually be found as “Jazzy_J” on the IRC Channel #ExtremeSpasticity on Freenode.net –> see: irc://irc.freenode.net/ExtremeSpasticity. You will need an IRC Client such as HexChat to connect.