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Jay C. "Jazzy J" Theriot

Jay C. "Jazzy J" Theriot

Thriving with an unknown ultra-rare genetic slow-progressive neuro-muscle disorder

Author: Jazzy J

Where am I?

Posted on March 29, 2024January 12, 2025 By Jazzy J

Disease: Thanks to a team of doctors at the VA, I’m upright most of the time. The roller coaster continues. The pain is considerably less. We are more focused on physical functions and losing them. I’m not going to list all my issues like I used to. Conversation is key and this media is not…

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